top of page
Search


Resources
I have spent countless hours finding any resources I can that could help Ben through this brain cancer journey. We will do whatever we...
Oct 7, 20222 min read


200+ pills and counting...
Ben has been taking his clinical trial medication for over 5 months now. (Over 200 pills so far) Just his last 2 doses, I have been...
Oct 3, 20221 min read


Skilled hands and amazing recovery
Yesterday Ben had a MRI to follow up from his second brain surgery and today we met with the Oncologist to go over everything. Ben’s...
May 13, 20221 min read


Back to Ohio
Today Ben and I head back to Ohio after a wonderful long weekend at home. It was very refreshing and it lifted everyone’s spirits to be...
May 9, 20221 min read


Todays progress
Today was a busy day! I swear we met with over 10 different doctors/specialists today. Ben’s neck is very stiff and tense so he had a...
May 4, 20221 min read


8 hours in surgery
My sweet, sweet Ben. It’s so difficult to see him like this. He has already been moved from PICU to a regular room, he was able to walk...
May 3, 20221 min read


Pray for Ben
Before you go to bed tonight, please say a pray for Ben. At 7:30am EST, Ben is scheduled for a second brain surgery. The surgeon is...
May 1, 20221 min read


A smile before his big day.
Right before we left for Ohio again, Ben received a signed photo and letter from Anthony Rizzo! He was so stoked! Ben brought it with him...
Apr 27, 20221 min read


The right team with the best game plan.
4.5 hour drive to Columbus, Ohio for a meeting with the Pediatric neuro oncologist at Nationwide Children's Hospital. The Team leader is...
Apr 25, 20221 min read


Hope for Ben
After days of groundwork, there is some hope. This has been the longest 5-6 days of my life so far. The entire Easter weekend was a...
Apr 21, 20221 min read
bottom of page