I have spent countless hours finding any resources I can that could help Ben through this brain cancer journey. We will do whatever we...

Ben has been taking his clinical trial medication for over 5 months now. (Over 200 pills so far) Just his last 2 doses, I have been...

This weekend we got to watch Ben do so many amazing things. We are extremely thankful for all the support and the bond he has with his...

I haven’t had a chance to thank everyone who has donated to Ben’s GoFundMe yet. But I wanted to say thank you to everyone who has...

What a day! This morning Ben received a visit from Stinger, the mascot for the Ohio Blue Jackets, a video call from Tommy Hawk, the...

Yesterday Ben had a MRI to follow up from his second brain surgery and today we met with the Oncologist to go over everything. Ben’s...

Today Ben and I head back to Ohio after a wonderful long weekend at home. It was very refreshing and it lifted everyone’s spirits to be...

Feeling blessed this Mother’s Day. Ben and I were able to come home for the weekend before we head back to Ohio for more treatments. I...

Everyday this kid amazes me. Everyday I see him feeling better, getting back to his old self. Thank you GOD! So many blessings to be...

Today was a busy day! I swear we met with over 10 different doctors/specialists today. Ben’s neck is very stiff and tense so he had a...

My sweet, sweet Ben. It’s so difficult to see him like this. He has already been moved from PICU to a regular room, he was able to walk...

Before you go to bed tonight, please say a pray for Ben. At 7:30am EST, Ben is scheduled for a second brain surgery. The surgeon is...

Right before we left for Ohio again, Ben received a signed photo and letter from Anthony Rizzo! He was so stoked! Ben brought it with him...

4.5 hour drive to Columbus, Ohio for a meeting with the Pediatric neuro oncologist at Nationwide Children's Hospital. The Team leader is...

After days of groundwork, there is some hope. This has been the longest 5-6 days of my life so far. The entire Easter weekend was a...

Only one full day of recovery at home and Ben is already chomping at the bit. Just like his dad, Ben is a busy guy and doesn’t sit still...

Yesterday morning Ben had brain surgery to drain excess fluid that was building up in his brain due to the tumor. The neurosurgeon also...

My name is Steve and I am the father of Ben. He is 10 years old and in April of this year he was diagnosed with a midline glioma tumor...